Cure CJD

Heather Larson's experiences in helping find the cure for CJD

It’s great to get a discussion going.

Take a look at all the comments at the Ecorazzi post about the “mad cow” episode of “The Simpsons.”

I’d love it if you would check it out and add your thoughts if you haven’t already.  Part of what moves this cause forward is YOU.  If we aren’t surfing the web and commenting as a community on the things that are important to those of us what have endured this, we’re really missing out.  I encourage everyone to comment on blogs, tweet about CJD on Twitter with the hashtag #curecjd, and put up their own websites about CJD.  Put up your a blog about your experience.  Share what you’ve learned with others.  Join the discussion.  Please.

This is part of the reason why I post to my blog more now instead of to the CJD Voice Yahoo group.  The group serves its purpose and you’ll definitely learn more there in a day than you will learn here at my blog.  However, I believe in making my thoughts about CJD public.  I think there is a power in putting it out in the world for all to see.

If we aren’t posting online about this disease, it may as well not exist. But it does, and it’s a horrific ordeal for anyone involved in it.  Get your message out there.  Don’t be afraid; be more afraid that it doesn’t get out there.

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October 30, 2009 - Posted by | Uncategorized | , , , , , , , , ,

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