About Heather Larson and the CureCJD Blog

My name is Heather Larson, and I live in Phoenix, AZ My mother, uncle, and their uncle have all died of fCJD, mutation e200K. My mission is to use the Internet to raise awareness of CJD and to connect people who are interested in finding a cure for CJD. The biggest mission of all is to help find the cure in any way possible! Feel free to contact me, leave comments, and follow on twitter.com/heatherlarson.

You can also email me at hotwords [at] mac [dot] com.

More about me:

My passions include music of all genres, yoga, finishing my degree “at” Boston University (online), writing and finding a cure for CJD. I was raised in both the Bay Area and Scottsdale. A career broadcaster, I’ve been in radio since 1998 and also work in online formats creating content. My current full-time job is writing entertainment news/morning radio show prep for Westwood One’s Metro Source. 98.7 The Peak has been my weekend radio home since 2005.

4 Comments »

HI heather, My name is christine lord and I am an freelance journalist who works for the BBC here in the UK . My only son andrew black (andy) died of vcjd on 16th december 2007 aged just 24. I was very interested in your site for many reasons, first I like to say how sorry I am about your family members who have died of cjd, its the cruellest disease.
Like yourself I have channelled my grief into finding answers and am currently pursuing the ministers and officals here in the UK that allowed BSE infected material into the human food chain. My ultimate aim is public and legal responsibility and justice for my son and all victims of vcjd. What struck me is the fact that like many victims of vcjd the first symptoms of which family become aware of maniefest themselves during the autumn winter monts….this was when BSE was at its height in UK cattle too. Also speaking to world experts in prion disease it would appear that sporadic or classic forms of cjd have quadrupled here in the UK, USA and in many parts of the world were UK bse infected material was exported. I have been told by Professor Collinge University College London who ws the scientist that prooved that BSE could cross the specieis barrier to man that ‘ sporadic /classic cjd has increased and it could be because there was BSE infected material in the food chain making it more likely for susceptible people to develop sporadic cjd’ he also said ‘ the next genotype who presents with vcjd may not present with the same syymptoms as the MM group.The symptoms of VV and MV GENOTYPES when suffering from VCJD may well present in a similar pattern to sporadic/classic cjd’ May 2008 I am very interested in the rise of sporadic/classic cjd here in the UK and the USA as I feel they may well be cases of vcjd or have been triggered by the ingesting of BSE infected material. It would also suit the UK government here that figures of vcjd are kept to a minumum.
You can watch the documentary I produced for BBC1 about my andrews last days and my fight for justice here in the UK if you click the link on the bottom of the home page on the website http://www.justiceforandy.com I am about to embark on a uk tour of universities and large organisations to raise awareness and gather support for the campaign. Hope we can work together in finding the asnwers and truth as this will be the best legacy our loved ones could have. I cry for and miss my beautiful boy every minute of the day …his loss is immeasureable…but I am sure with my friends and supporters here in the UK , USA and globally I will get justice for my son and all victims of cjd. best wishes Christine Lord Portsmouth Hampshire UK

Comment by CHRISTINE | October 1, 2008
Congrats on the website(s) Heather! I think they do a real service to people suffering with CJD so the more the better. I have found that it also helps me spiritually, the son of a CJD sufferer, as well. Good luck! – Mike

Comment by M. Childress | October 1, 2008
Heather,
I’m also a member of CJDVoice having lost my mother to this disease in 2001. I read all the emails, but don’t feel I know enough to really contribute. I’m interested in learning all I can and helping in any small way possible to finding a cure for this awful killer. Keep up the great work you do. Thanks, Jeanie

Comment by Jeanie | October 1, 2008
FYI

See press release at amofix.com re 100% test for vCJD

Comment by David | December 20, 2008