Cure CJD

Heather Larson's experiences in helping find the cure for CJD

Please participate in Footwork For CJD

This is an event this weekend in West Virginia put on by my friend, Nikki Bland, who also lost her mother to CJD.  If you visit the Snively family’s blog, you can see a cool video they’ve put together of last year’s event.  Even if you aren’t in West Virginia, you can still donate to the cause either through Nikki or the CJD Foundation.  If you write a check to the foundation, please write “Footwork for CJD” in the memo so they’ll know you’re supporting the West Virginia walk.  You can also donate online at the CJD Foundation’s website through paypal.

Here’s the walk info:



The Creutzfeldt-Jakob Disease (CJD) Foundation, with the event organized by Nikki Bland and family


A walk where you will collect pledges on a flat fee basis for your participation.  The amount raised is up to you!  The day will begin with a remembrance lap.  Learn more about Creutzfeldt-Jakob Disease and meet families who have been affected by it.


Duvall-Rosier Field located on the campus of Fairmont State University, Fairmont, West Virginia


Saturday, November 14, 2009 – registration at 9:00 a.m. and walk to begin at 10:00 a.m.


To benefit the CJD Foundation’s HelpLine, the only HelpLine for CJD patient and family support in the United States, The Annual Family Conference in Washington D.C, and The CJD Foundation Family Discretionary Fund.

Please contact Nikki Bland for more information at or  You can also visit the family’s blog at for more information.  To learn more about Creutzfeldt-Jakob Disease, visit the CJD Foundation’s web site at

You can also make donations payable to:

CJD Foundation, Inc.

PO Box 5312

Akron OH 44334


November 10, 2009 - Posted by | Uncategorized | , , , , , , , , , , , , , , ,

1 Comment »

  1. Thanks again for your support. I’ve just recently figured how to start reading your blog – technically challenged as I am. Your recent posts of your mom’s admission to the hospital, her confusion, her ataxia – it’s bringing it back to me in a really horrible way. It’s something that only you and I and others like us could ever understand. I hope that each and every day you are finding a little more of yourself!

    Comment by Nikki | November 11, 2009

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