Cure CJD

Heather Larson's experiences in helping find the cure for CJD

Making a difference takes facts.

I have just gotten into an argument with someone who makes no sense  —  something I try never to do.  I thought I’d post some of it here because I think the message bears repeating.  A person named “Ainee” keeps posting on my blogs  —  and on the blogs of others  —  that he or she believes it is true that doses of vitamin B1 cured cattle in Australia of a “brain wasting disease”  in 1968.  You can read the entire back-and-forth argument on my last post.

Considering the amount of cattle that have died from “brain wasting” diseases across the world since 1968…I am just going to take a wild guess and say that vitamin B1 doesn’t cure brain wasting disease in cattle.  And what brain wasting is this supposed to be, anyway, “Ainee?”  Are you referring to BSE? Another type of brain wasting disease, possibly?  (I haven’t spent much time over the last six years studying diseases that kill cattle that aren’t BSE).

I’m trying not to condescend here.  I’m trying not to be rude.  But, “Ainee,”  you have no proof.  You have no last name.  I truly want to create a safe place where people can come to discuss CJD and the many issues surrounding it.  I’m not saying your theory isn’t true.  I’m just saying your methods are lacking in any credibility.  Which is disappointing.  Because that’s of no use to anyone, not even the cows.

This “Ainee” person seemingly crosses the line saying he or she cured his or her own Kuru-like symptoms. This person’s exact quote is this: “I told my doctor in 2001, after I did some research, that my symptoms were like those of Kuru and Scrapie.”  Are you saying you think you had a prion disease?Because first of all, that can only be verified with an autopsy.  But since you’re obviously still alive, did you ever have a brain biopsy or spinal tap done on yourself?  Didn’t think so.  Because once this disease sets in, you don’t self-cure.  You don’t self-treat.  Ask Jonathan Sims’ parents.  Ask my dead mother, my dead uncle, and their dead uncle.

What is really irritating is that this isn’t the first person who has found me and told me they’ve cured their own CJD.  There are so many diseases with symptoms like that of CJD; this is why it’s so hard to diagnose.  You could have had any kind of rare disease, Parkinson’s, multiple sclerosis…

I’d like to reiterate what I said in my comments directly to “Ainee.”

Making a difference takes facts.

Like I’ve said before, I want to create a place where people feel safe to come to read, study, comment, network, and communicate about CJD.  That’s why when you post something like this on my blog, I’m going to take you to task on it.  Where’s your proof?  Your source?  Your research?  Was this ever published in a peer-reviewed journal?  Do you know these veterinarians?  Do you know the  farmers who allegedly cured their cattle in 1968?  What are the dosages?  What were the cows diagnosed with?  Was it BSE or some other disease?

I can jump on your blog and claim I walked on the moon.  Have I?  Can I prove that I have?  I haven’t.  But you don’t know that…I can claim it though, can’t I?  But that doesn’t make it true.

I am trying to make a difference here.  That’s why I post using my full name.  People know I am Heather Larson in Phoenix, Arizona.  I have posted an extensive amount of personal information about my mother, Phyllis Larson, and her death.  I have posted about her symptoms, I have posted what our family’s genetic mutation is (E200K) and I have talked about my own personal feelings.  This is all here for the world to see.  I’m an open book.  I share my information because I know it helps someone else.  I cite sources and post links.  I urge you to do the same.

I can understand why some people won’t post their names online, so I’ll give you that.  But if you’re ever going to get anyone to take your claims seriously, you’re going to need to back them up with something.

And to all of you who claim you’ve cured your own CJD, shame on you.  That’s such a terrible disrespect to those of us who’ve dealt with the reality of what CJD is.

It is my goal to talk with people of credibility here and to post my findings for the rest of the world to read.  The “Ainees” of the world are going to have to take a backseat to those who are actually working for change.  So while I respect all who comment on my blog, I am not going to let this turn into a free-for-all where B.S. can just be posted here like this is some CJD gossip site.

I can die from the disease.  I am not after “maybes.”  I am after definitive answers.  That’s my game.  You can play with me, or you can find another sandbox.

Heather Larson, Phoenix, Arizona

Twitter: @heatherlarson

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March 19, 2010 - Posted by | Uncategorized

3 Comments »

  1. Heather, first of all, I’m not arguing, I’ve been through hell, and I want to help others who may not be in the position to speak up and for those in the future who may benifit from my information.
    Vitamin B1 was found to be a successful treatment for Polioencephalomalacia – PEM – in livestock. Research found PEM symptoms in livestock, are similar to many neurological illnesses in animals and humans, as well as CJD in humans.
    In the Hungerfords Diseases of Livestock book – which was written by an Australian vet, T J Hungerford – it said a vet in Australia, in 1968, found VB1 treatment was a successful treatment for PEM, a brain wasting disease in livestock. For PEM in sheep “Daly dosed with thiamine 400mg. intravenously or intramuscularly. Doses of less than 250mg intramuscularly were ineffective. Treatment was quite effective provided cases were found before they became laterally recumbent.”

    PEM is supposed to be caused by lack of VB1. Research has found other causes. Like the cow diagnosed with PEM (in 1968) after giving birth to a calf. The treatment for the cow was “Thiamine in doses of 1gm. intravenously per 1,000 lb b/w (body weight) followed by i/m administration appears benificial.” it goes on to say “When some members of a group of animals started to show symptoms, the preventative administration of thiamine may have merited. (used by Pass 1968). – Maybe something here for herds with susspected BSE?
    I actually spoke to the vet Daly a few years ago – he said he had used the VB1 treatment, but didn’t know why it worked.
    I actually found out how it worked – I wrote down doses, rates, how I felt, how long it lasted etc., over many months. I used doses of 250mgs VB1 tablet – 3 times a day as suggested on the bottle, this suppressed my symptoms for a few hours. I had symptoms, but could cope better. After a couple of months, I was not feeling much better, so started to increase the dose (as it said in the book for sheep with PEM)- I felt something was working better, even though I was still very ill. I now suggest 250mgs VB1 tabl et- 3 times a day also 1000mgs Vitamin C tablet or powder – 3 times a day. Thats 6 doses and will give a better coverage 24/7. Perhaps injectable VB1 treatment would give a quicker and better result.
    I have never said I had CJD, but I sure had similar symptoms. Similar symptoms – why not similar treatment?

    I’ve been able to contact 4 families overseas with loved ones diagnosed with CJD. One lady couldn’t walk, talk, eat, was bed ridden. This lady was given VB1 treatment – a few months later she was getting back to normal, so the doctors downgraded her illness to encephalitis. A man in US diagnosed with CJD, was given VB1, but doctors stopped the treatment as they thought it would damage his liver. The man died – I suppose a damaged liver could be treated – but not death. Another man and women were trying VB1, but I haven’t heard from them for a long time.

    Yes, I had similar symptoms – again I will say, similar symptoms – of PEM in livestock – I was never tested for CJD, no brain biopsy etc., but had many tests which didn’t find the cause of my symptoms and nothing was diagnosed in relation to my symptoms. If our vet hadn’t sent the specimen of our sheep away to a lab and the symptoms and treatment weren’t on the fax we received, I would never have known my symptoms were like those of PEM.

    I’ve been posting my research and findings since 2005. One bloke said I was selling snake oil and that it won’t work. I replied I’m not selling anything, I’ve given my research and findings free of charge, and asked him how does he know it won’t work unless he proves otherwise.

    I guess VB1 treatment is so simple that the medical profession haven’t bothered to try it. The benifit cannot be gained in a test tube and mice in a lab perhaps can’t tell the researchers what they feel. I praise the Aussie vets for including the VB1 treatment in their paper work, which TG Hungerford put into his book.

    I don’t have a blog – maybe one day.
    I’m happy to try’n answer any more questions you may have, and perhaps give some answers that aren’t in any medical book.
    Regards
    ainee

    Elaine Schofield
    23 Platypus Gardens
    Cooma 2630 NSW
    Australia
    ainee.pv@hotmail.com

    Comment by ainee | March 19, 2010

  2. Heather – I hoped that you would have also replied to my post on Making a difference takes facts.
    I’ve given you some scientific facts, answered your questions, submitted my name/ address/ email, now I’m hopping you’ll help deliver my information to those who can make a difference, to take my research and findings one step closer to perhaps saving lives.
    Regards
    Elaine

    Comment by Elaine Schofield | March 27, 2010

  3. Heather, I’ve recently realized, as I wasn’t diagnosed with anything in relation to my symptoms and no cause was found, I was treating my symptoms – NOT a diagnosis or cause.

    I believe my research and findings could help doctors and researchers find the benifits of this treatment which would never be found in a test tube – and I doubt if mice in a lab could tell of the benifits.
    Elaine

    Comment by Elaine Schofield | September 17, 2010


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