Cure CJD

Heather Larson's experiences in helping find the cure for CJD

CJD and junk food? Depression?

This is a rough time of year for me; September and October will always mean the “beginning of the end” because that’s when everything happened with my mom.  I usually think about it too much at this time of year.  The seasons change and the memories come back.  But not this year.  It’s been six years since my mom started to change in 2004.  The memories are distant right now.  I’m fully aware of what time of year it is, but I’m really busy with a project right now.  I realize I’m pouring all my time and energy into this project so I don’t have to think about my mom’s illness and death.

I’ve been reading the journal I was keeping in 2004.  What I wrote on those pages are my only verbatim memories not clouded by time.  On September 6, 2004, I wrote down that I thought my mother was depressed.  My concern at the time was that I hadn’t eaten well that week; my parents had been keeping a lot of junk food around and I guess I’d been eating it.  I was complaining about the amount of junk they were eating and simply dismissed it as being something my mom was doing because she was depressed.  I simply thought she was suffering from depression!

I remember someone at some point telling me someone they had lost to CJD was obsessed with junk food before they got really sick.  I wish I could remember who that was.  If I remember right, it was sweets that my mom wanted all the time. I think there were thinks like cookies, donuts, and cakes around — but that’s one of those memories clouded by time.

Has anyone else had a similar experience?  In September of 2004, my mom was exactly two months from her death.  The disease was about to progress rapidly.  I knew nothing.  I couldn’t have been more clueless at the time.


September 19, 2010 - Posted by | Uncategorized

1 Comment »

  1. Having lost a ‘best’ friend to CJD 2 weeks ago, I can tell you that what appears to happen, several months prior to death, is that a person, first loses their learned ability to cook food, then loses ability to even make a sandwich, as this is too complicated for the brain to put together. Therefore, finger foods, like potato chips, cookies, donuts and brownies, nuts, or any other readily available tasty finger foods are just about all the person can do to feed themselves. Later, of course, the person has to be hand fed by someone else.

    Comment by ER Johson | November 7, 2011

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