Cure CJD

Heather Larson's experiences in helping find the cure for CJD

Tackling another bucket list item: the marathon

I started running last year and have really gotten into it. It didn’t even give me pause when I signed up to run the San Diego Rock N’ Roll Marathon last month. I’ve never even run a road race! But I plan to push my body and my running to new limits as a part of the Leukemia & Lymphoma Society’s Team In Training.

You can read the backstory on why this matters to me on my fundraising page here. Feel free to donate and share that link.



One of the ways in which CJD has changed my life is it has given me a strong desire to do some good while I am alive. Our lives must mean something. Funny how mortality makes us realize this, isn’t it? If you don’t like something, change it. I didn’t like seeing my friend suffer through cancer. So I’m about to raise $3,200 so someone else’s friend someday doesn’t have the same experience. It’s as simple as that.

Why else are we here if we don’t make this world a better place in any way we can? You may be facing a life of question marks like me. Will I get CJD like my mom did? Am I positive? Should I find out of I am positive or negative? What’s the point? Why care? Why not just live my life?

If you’re wondering how to sort all that out, give yourself something. Give yourself a purpose. Why are you here? What is your heart’s desire? What do you most want to do? Ask yourself some constructive questions like that. You’ll get somewhere. No pressure. Don’t force it. It will come to you.

If you just found out CJD runs in your family, I know it seems pointless. It’s not pointless. You have to find reasons to live. You have to find ways to make your life rich, however long that life may be. Will you live a rich and full life? Or do you give up?

Pick living a good life. Trust me, the answers will surprise you. I know, I’ve been there. I’m still there. I’ll always be there until we find the solutions to the CJD problem.


February 13, 2013 - Posted by | Uncategorized

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