Cure CJD

Heather Larson's experiences in helping find the cure for CJD

The exposure.

If you don’t like it, be a part of the solution.

http://www.nbcnews.com/health/13-patients-possibly-exposed-rare-fatal-brain-disease-n-h-8C11073734

So I left the following comment on Boston.com’s status:

“CJD is genetic in my family. Please allow me to make one point clear to you. Humans do not get “mad cow disease.” That is the prion disease cows get called BSE. Humans get CJD in its various forms. If any of those exposed ever develop the disease, they will display symptoms of iatrogenic CJD. If any of this upsets you, please donate to the research being done at UCSF Memory & Aging Center. It will help people like the ones exposed as well as people like myself — all of us who are at risk of developing CJD. Thank you.”

https://www.facebook.com/boston/posts/10151903060854365

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September 11, 2013 - Posted by | Uncategorized

2 Comments »

  1. Heather, thanks for continuous updates. I have also been Reading the cureffi blog. Although quite frankly much is over my head:) Hoping something good turns out from Anle 138b. Unfortunately, hearing too many maybe’s on all sorts of options and not enough yes’s, it gets depressing. I have been involved in studies at IUPUI in Indy for over 6 years now and it just seems like they are no further than they were when I started. I guess it just takes time. Prion diseases like CJD, FFI and in my case GSS must be stopped. Awareness and money are key. One day soon I pray.

    Comment by Paul | September 14, 2013

  2. I found some good news today! Eric & Sonia have their study on GSS fully funded, so whatever they raise goes toward researching FFI and E200K fCJD as well. What a happy day!
    http://www.prionalliance.org/2013/09/17/gss-study-funded-now-fundraising-for-ffi-and-e200k/

    Comment by CureCJD_Heather Larson | September 17, 2013


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