Cure CJD

Heather Larson's experiences in helping find the cure for CJD

Ionis slates clinical trial for late 2022

I’ve waited 16 years for this!

Given the pandemic, I’ve wondered if research would be affected but it keeps trucking along. Ionis put out a press release yesterday saying it’s scrapping the plans to do a clinical trial this year in favor of looking at a different drug for a clinical trial late next year.

I’ve waited 16 years to see someone do a clinical trial. To see one in the works is good medicine for those of us who have lost loved ones to CJD — especially those of us what have lost several.

In total kismet, the news came on the anniversary of the day my great-grandfather arrived in the U.S. I am still trying to figure out if it was him or his wife who carried the mutation. Hopefully the pandemic can calm down so I can continue researching. There’s only so much I can do online.

I hope Ionis finds success with their clinical trial next year. Even if they don’t, it’s time to make progress on finding treatment for CJD — a disease that has yet to have its own clinical diagnosis.

April 8, 2021 - Posted by | Uncategorized

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